Tag Archives: kids

Thalassemia – The Verdict

What up Peeps! When we last left our heroine, she was in search  of, or confirmation of the cause of her ridiculously low iron levels. Sorry, I had to got there. At times during the past few months, this journey has felt like a soap opera. I haven’t been to the doctors this much in my entire life. Well after months of taking iron pills, revamping my diet, and adding more vitamin supplements than are humanly possibly thanks to Frankie (7 pills), my iron levels are amazing! And my addiction to ice is gone! Like completely non-existent. Talk about a complete 180.

By now, I am a professional at getting blood taken

I went from 6.2 (should not have been unconscious) in January, to 9 in April, to a whopping 13 yesterday. My doctor was shocked at how much my levels increased. She even said my numbers were “beautiful”. Say what?!? I didn’t have the heart to tell her that I am only taking one iron pill a day instead of two. Whoops! Let’s keep that between us shall we? I’m still on iron pills for another 4 months, but after that , long medium size red pills that are not covered by insurance!

She was so impressed with my numbers that I had to remind her about the whole Thalassemia thing. And guess what??? I have the trait!!! Why am I so hype? Because I finally have confirmation that there is something funky going on with my blood! It’s one thing to assume that there is something going on, but it’s totally different and liberating to have confirmation. Now if I go get some blood work done and my iron count is low, they won’t call me frantically at work telling me to
go to the ER and then be told that I need a blood transfusion. Hooray.

There is one caveat. Of course there is always something right? If I so happen to meet someone who also carries the trait, our potential children could have Beta Thalassemia, the actual disease. I won’t go into specifics but it’s not good…

So there you have it. I’m just a girl with the Thalassemia trait living in the real world. It’s just another thing that make me, me!

Later Days
B

I can’t keep calm…. I’m going to Disney World!

I can’t keep calm. I am going on vacation. But not just any
vacay…. I’m going to Disney World and I didn’t need to win a championship to do
it!
The Man

Who doesn’t love Disney or Disney World? I know that we are
all over Frozen (no I don’t want to build a snow man), but come on. It’s
flipping Disney World!!

Magic Kingdom At Night
What do I love about Disney World? EVERYTHING!!! It is the
only place on earth where I can sing Disney songs at the top of my lungs,
inhale funnel cake, steak, and Dole Whips, while running down Main Street USA
and no one thinks you are crazy; because they are doing the same thing.
The Magical Arch
 As soon as I arrive
under that magical arch that says “Welcome to Disney Word”, I am home. I am instantly
a kid again and all of my grown up problems are out of the window. The only thing
on my mind is when I will ride Space Mountain and get my Dole Whip. If you have
haven’t tried one, it is frozen dessert deliciousness.
I can’t freaking wait. I can wait for the 5am flight, but I can’t
wait for the tingling feeling that will come over me once I get to my happy
place.
Be Our Guest
What am I looking forward to? (In no particular order – well
maybe some order):
Le Cellier Restaurant
(Epcot) – the best steak ever!!! I don’t eat beef, but I will this weekend! And
the Poutine and Wine are spectacular
Be Our Guest
Restaurant
(Magic Kingdom) – my all-time favorite Disney movie is Beauty
and the Beast. I can recite it word for word. So just imagine, sitting down to
Breakfast, Lunch or Dinner in the Beast’s castle… And the Beast walks through
while you are eating… and they have the Grey Stuff!!! Such a cool place to eat
and thanks to some Disney Magic, it looks like you are in the French Alps when
you look out the window
Dole Whips (Magic
Kingdom) – Frozen pineapple custardy goodness. So refreshing, hope mine doesn’t
fall out of my hand like last time
Space Mountain (Magic
Kingdom) – This was the first roller
coaster I ever rode in my life. I was 7 and it was the start of my roller
coaster fascination (just ask any family member)
Captain E-O (Epcot)
–in all of its 1980’s glory. Michael Jackson in a cheesy 3-D movie. Sign me up.
A total classic.
Magic Kingdom
Absolutely no explanation needed
Fanstasmic (MGM Studios) – the best evening entertainment at Disney
World. Yes I said I, because it is true! Such a good show with songs, drama,
and fireworks.
There are so many other things
that I am looking forward to, but this is just the top of the list! And yes it
is true what they say, you do need a vacation from your Disney Vacation, but it
is so worth it!
So here’s to all my Disney Lovers,
Dreamers, and Believers.
All you need is a little faith,
trust and Pixie Dust

 

Later Days!